Announcing MEF2C Awareness Day: May 14th

The MEF2C Foundation is proud to proclaim May 14th as MEF2C Awareness Day in the United Kingdom, recognising the individuals and families impacted by genetic variants of the MEF2C gene.

Taking MEF2C Awareness to new heights: MEF2C Awareness Day

MEF2C Haploinsufficiency Syndrome (MCHS) is a rare genetic disorder that profoundly affects neurological development, leading to challenges in communication, mobility, and cognition. While raising awareness is vital, our ultimate mission is clear: accelerate research and secure a treatment for MCHS as fast as possible.

By establishing MEF2C Awareness Day, we aim to bring visibility to MCHS, drive investment into research, and unite a community of advocates dedicated to finding a cure. Every breakthrough brings us closer to a future where individuals with MCHS receive the treatment they need.

We call on individuals, organisations, researchers, and policymakers to join us in pushing for progress. Awareness is just the beginning—action leads to treatment.

To learn more about MCHS and how you can support research efforts follow our journey on social media.

Join the Movement!

Follow us on [Facebook | Twitter | Linkedin | Instagram] and use the hashtag #MEF2CAwarenessDay to raise awareness and demand action.

Together, we can and will make a difference.